Jeff Young's Fight Against Colon Cancer

Tuesday, August 26, 2008

Talked to person in charge of trial/Wound Update

I just talked to Don Payne this morning. He is the CEO and President of Nanospectra, who is fronting the trial that we are trying to get an exception for. He is open to accepting Jeff, but he needs to talk to Jeff's oncologist about the medical logistics to see if the oncologist thinks it is safe for Jeff to attempt this trial.
According to Don, if that all goes well then we have to find a surgeon in the area that the hospital review board would approve and then we would have to have the willingness of the surgeon to perform the procedure. This means that Jeff could do this trial locally or maybe at KUMED!!!! That was an extra bonus I wasn't expecting.
There are still lots of hoops to go thru, but we are done with the first one.
Also, another miracle on Jeff's part. The odor from Jeff's wound is pretty much gone and the drainage is looking better. He is a walking miracle and proves that to me day after day. His mesh that is exposed from the hernia repair has started to bunch up (that is the best way I can describe it). The hospice nurse told Dr. Ekram, but Jeff isn't having any symptoms from this change, so we will just monitor it for now.
I am calling the oncologist to check into a procedure called RFA. The colorectal advocacy group C3 sent me some e-mails about it and Jeff has decided that he is open to it. This is not a cure for him, but could potentially get rid of the abdominal tumors to help with pain. There is a person here in Lawrence that does it and then the surgeon that put in Jeff's port in Topeka (Tim Allen) also does this procedure. It is FDA approved and a lady here at work told me her husband had it done for his lung nodules & the insurance company covered it after some fighting. Not for sure if Jeff would be a candidate for it or not, but figure a consult doesn't hurt.
Everybody keep up the good energy and prayers.

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